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Fox Insight Collects Online, Longitudinal Patient-Reported Outcomes and Genetic Data on Parkinson's Disease

By Luba Smolensky, Ninad Amondikar, Karen Crawford, Scott Neu, Catherine M. Kopil, Margaret Daeschler, Lindsey Riley, 23andMe Research Team, Ethan Brown, Arthur W. Toga, Caroline Tanner

Posted 30 Jul 2019
medRxiv DOI: 10.1101/19002659

Fox Insight is an online, longitudinal health study of people with and without Parkinsons disease with targeted enrollment set to at least 125,000 individuals. Fox Insight data is a rich data set facilitating discovery, validation, and reproducibility in Parkinsons disease research. The dataset is generated through routine longitudinal assessments (health and medical questionnaires evaluated at regular cycles), one-time questionnaires about environmental exposure and healthcare preferences, and genetic data collection. Qualified Researchers can explore, analyze, and download patient-reported outcomes (PROs) data and Parkinsons disease-related genetic variants at https://foxden.michaeljfox.org. The full Fox Insight genetic data set, including approximately 600,000 single nucleotide polymorphisms (SNPs), can be requested separately with institutional review and are described outside of this data descriptor. Fox Insight is sponsored by The Michael J. Fox Foundation for Parkinsons Research.

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